I am lucky enough to be learning a new skill, making stained glass, as part of this amazing group. It has become so much more for me than a class, it’s a place where I’ve found myself again.
What are you playing at? Seriously, I thought we, as a body, were all in this together; fighting against the odds of EDS and Heart Failure, beating them against all expectations and doing a pretty impressive job of it actually. Then, you took it upon yourselves to go off-piste and take control in, frankly, a hostile-coup! I have been kidnapped and need to be rescued before all the things I know about myself and who I am fail to exist!
Menopause, peri or otherwise, you need to take a long-hard look at your behaviour and attitude to this relationship. You’re walking all over the rest of the bodily functions and just making decisions without consultation, or warning, and expecting the rest of us to keep up. What about some instructions or case-studies to ponder before being taken down a path we did not choose?
Let’s start with emotions; I have always been an emotional person, driven to hasty outbursts of love, tears or anger, not one to hide how I feel about things. I had them pretty much under control as a woman approaching 50 though, and could usually decide appropriate locations to share emotions that might impact others. Now, however, you’ve decided that I need shaking up a bit and even the mention of a sad-pet-story or a child telling her dad she loves him, reduces me to a wreck, crying uncontrollably, with snot-bubbles and everything. I heard Michael Buble singing this morning and cried for almost an hour. When John innocently entered the room and asked what was wrong, I started all over again.
And let’s not even begin to talk about Politics or I’ll be ranting for hours about the injustices on the planet and whom I believe to be responsible for them. This is often followed by me throwing things! Seriously, I had to replace a whole set of glasses last week as we were down to our last three. I go outside almost daily and throw something at the wall, just so I won’t do anything worse. John is learning to spot the signs and has started suggesting we go and cut wood in these moments as I achieve so much more that physically I thought possible when filled with this overwhelming urge.
Night time seems to be your chance to really punish me though, with sweats that mean I have to shower at 2am and anxiety like I’ve never experienced before. I’m worried about everything at night; from our ongoing struggle to sort our accounts out from when I had my surgery to whether I will make it my 50th this autumn, to what might cause the house to burn down. And each worry seems to real, so important, that I am totally unable to resolve any of them with a sense of my usual calm.
I am horrible to John, to myself and even on occasion to our pets. I am ashamed to say I shouted at Branston (our dog) yesterday, just because he made me jump when he put his head in my lap. He just wanted to let me know he’d picked up my mood and could help, but I shouted at him. I hated myself for a whole day for that. I cried over it every time I thought about it. Thank you for that, dear hormones.
I tell myself every day that I will take control and “own” my response to your constant changing, and that I can get through this without being awful or angry or ridiculously sad. And so far, every day, you do your best to scupper my plans. Well, okay, I get it, you want my attention and you want to be noticed. I NOTICED! YOU HAVE MY ATTENTION! Now please, can we attempt to work together on this?
Yours, in hope,
I have never been a fan of New Year’s Resolutions; it strikes me that January is about the worst time (especially in the Northern Hemisphere) to start committing to enormous goals and making sweeping promises about our consumption, or denial of, certain pleasures from alcohol to sleep. It is cold, dark and miserable for a large part of the time and this is not a great way to motivate yourself, indeed the simple lack of Vitamin D we suffer at this time of year has a significant enough impact on mood to almost guarantee challenges.
In addition, I have a sense that Resolutions are not for the long term. They are announced to our small community of friends and colleagues, often on Social Media, with much sincerity and complete belief that we are going to do “it” this time. Who are we making these announcements for? Who are we trying to convince that this year, this time, we really do mean it and really will do all the things we didn’t bother to finish the last time we set this challenge for ourselves. Some kind of self-punishing cycle we perpetuate year after year that, often, results in little being achieved other than a confirmation that “I never finish anything” or “I am a quitter”.
When I work with clients who feel trapped in this cycle, we look at things with a view to making change; change that is a long-term commitment to doing something in a way they have not been doing them consistently until now. Perhaps you’ve experienced that initial feeling of belief and commitment that comes with the new year, and set yourself the challenge to change a pattern in your life that has become a habit with a negative impact for you. It can feel overwhelming, so here are my top tips on making real, lasting change without running out of steam before it has a chance to make the impact you want:
- Set yourself up to succeed, not to fail. The easiest way to make change difficult is to make the goal so vast that you believe it is beyond reach; don’t get carried away by other’s stories of success or the “amazing” results promised by programmes or courses. Set your own, realistic and small targets that allow you to celebrate lots of small successful steps towards constant change.
- Change one thing at a time. Yes, there is time. No, you will not achieve more if you change everything that is wrong at the same time. Small, single and repeated change makes you stronger and more able to make the next change, and the next…..
- Wipe the slate clean; every day. And then wipe it clean again. When we constantly hold ourselves up to measure against what we used to do, or what others do, we are focussing on things that we have no control over. If you had a bad day yesterday, wipe it out. You can no longer change yesterday. We can certainly learn from our past, but when you start to use the past to create excuses to block your own success, it is time to wipe it clean and start with a positive mindset.
- Surround yourself with your “why”. Lots of Coaches and Mentors will help clients find their true motivation, the reason they do what they do, the real “why”. And often, once we’ve identified what we’re doing it for, we forget to focus on this. When the hours we’re putting in seem crazy, or we’ve got another weekend scheduled, it’s helpful to have photos, written goals and successes on view, where we can reconnect with our motivation and let go of the resentment that can undermine our success.
- Create accountability. This is where we often go to Social Media and “announce” a goal we’re setting. Great idea to share, as this creates accountability. However, I would advise caution here; sharing with a wide audience, who may not understand your personal motivation for change, can be the quickest road to being talked-out of change. Perhaps wiser, as a first step at least, is to share with a person (or people) who you know will help and encourage you and understand how important the change is for you. Ask them to help you stick with your goal for change, especially when you ask them to stop!
Making change that lasts is never a straightforward process; there will be twists along the way you could not control or predict, and your ability to see these are bends in the road instead of an excuse to give up, is what makes the most impact on lasting change. I have changed my entire lifestyle to accommodate changes to my health and every day, in some small way, I have to adapt what I thought I had now got :the way I want it:. Be open to the possibility that some of the twists and turns, and challenges, might also be opportunities to see a different option; change is flexible and a work-in-progress.
What changes are you most proud of from the last five years? Think about how you achieved them and what your motivations were behind them.
Have a great day
I’m not sure if it’s an age thing, a woman thing, an inner-hippy thing or perhaps just a human thing, but I find myself more and more recently contemplating how far from love and compassion society seems to be heading. With the influence of the freedom that was promised by the internet, there seems to have come an overwhelming amount of misinformation created and spread by those with agendas of hatred and greed. As I attempt to quash the overwhelming desire to pick up my banners of old (when I marched in the 1970s and 1980s we believed we could make a difference) and remind myself that I’m not as fit as I once was, I can’t help thinking it’s time to focus on a bit more love.
I watch with fear and dread what is happening in the US as they approach their election; when President Obama was elected I was so full of hope, but Capitol Hill soon put paid to any hopes he had for making change. The Republicans destroyed any chance he had to make the real changes the US needed, and they, as a result, created the monster that is Trump. I have listened to every debate with a growing sense that the level of hate that has built up, not just on those claiming a Trump vote is a protest vote, but also globally as shown by the Brexit voters who, likewise, claimed they were standing up to the corrupt and making a statement. The hate everywhere is leading to the breakdown of communities, the blame-game culture grows, the circle continues…..
I watch young people growing up in a place where they are taught to hate not just those who are different, but to hate themselves. They are bombarded with messages that tell them they are not enough. They must be taller, thinner, smarter, funnier, more cheerful, more positive, more successful…. And we wonder why they hate? How often do we teach our children to love? How often do we tell our teenagers that they are loved? Which are the messages that are most shared on the social media they (and we) all value? Rarely the positive, most are either fuelled by hate or people feel they have the right to comment with hate.
I watch my mum-in-law in a community where we’ve been accepted with open arms, no judgement and a chance to prove ourselves, and she is thriving. Thriving on love. She tells me she has a purpose now, one she’d never felt before, her mission is a simple one, to make as many people smile as possible every day. And she’s accomplishing her mission, by being part of a community and a volunteer in the local Red Cross shop. People go in every day, just to get a cwtch (It’s a Welsh thing; more than a hug and all about love) and she’s filled with joy.
It is so very easy to get caught up in the negative tones and emotions that seem to be so fuelled by our media and in this society that is dominated by the hate-filled and greed-fuelled power of the few, I intend to stop listening to them and instead, spend more time on Love. Love of my home, my friends, the amazing support network of family I have and new friends and community I love more each day. Will you join me, and make your attention focus one of love.
It is one of the conversations I hear most often as a Mentor; a client is feeling down, their confidence is at an all-time-low and they’ve just admitted that today, someone told them they didn’t like what they do. “They said my style wasn’t right for them”, “She said my product wasn’t as good as their other choice”, “He’s told me he’s not renewing our contract”, all news that everyone in business has heard at one point, and is likely to hear again. The painful truth is, you are not going to be everyone’s “cup of tea” and that is great news. If you want to please everyone, you’ll have to be bland, middle of the road, non-controversial, happy to stay put and resist change, oh and more than anything else, you’ll need to be average.
I can say with confidence, that nobody ever wanted to run an average business, lead an average group, give an average service or teach an average class. We have all encountered businesses who have attempted to be all things to all people, but without exception, they fail. Take any brand, however well known, respected or credible, and you will find a customer who has had a bad experience with them. Any brand. One of the greatest challenges facing our Public Services is that they are expected to be exactly what we all need, at every stage of our lives, whatever our circumstances. I must say, as someone who would not be here without our NHS, I am grateful that this remarkable group of people somehow manage to be anything but average, on the “shop floor” and it is thanks to these remarkable, way-above-average people that this service delivers miracles every day.
Accepting that you’re not going to deliver, or accept, average in your life, requires you to be clear about where you draw some lines:
- Say no to potential business
We’ve all been in that place where work is at a low point and we’ve considered working with someone when our gut is telling us to walk away. Perhaps the cash was just too tempting, or the introductions promised are getting you into a new market; as you’re saying yes, you know you should be saying no and sure enough, within weeks, you encounter problems. Saying “No. This is not for me” is one of the most difficult and fantastic things you will ever do; overcoming the desire to make the wrong decision for a short-term gain, and having the confidence that something better will come is a moment you will look back on with pride and pleasure in the future.
- Decide what “above average” really means to you
If you are going to set yourself up to succeed here, you need to set some guides in place for measuring your delivery as being “above average”. A great place to start this is to ask previous and existing clients what it is about your service or products that keeps them coming back to you. Ask them what makes you unique and what they most value in what you do for their business. These are your pointers for excellence and setting these as standards you will achieve for every customer will allow you to be realistic about the consistence and credibility of your services.
- Manage expectations with authenticity
It is almost certain that it is the very things that some don’t “get” or like about you that will appeal most to others. We have all discovered with experience that our greatest strengths are often our greatest weaknesses when we are at our most vulnerable and with this in mind, being authentic about who you are, how you work and what it is that makes you different, is key to attracting the right clients to your business (and the same applies to attracting friends and partners too). This means being yourself at all times, even when it is tempting to conform, or play-down your individuality, even if you’re finding number one (above) hard to master. I remember the greatest compliment I received the first time I met someone who’d only conversed with me on line; “You’re exactly who I thought you’d be” he told me “You come over on Twitter and your blog just as you do on stage and over coffee.” Being yourself, setting an expectation in advance, helps attract the right people and also helps avoid uncomfortable situations with the wrong ones.
- Refuse to accept average
I always have respect for people who “walk their talk”, especially when I know it requires effort. Accepting average service is a choice; if you’re regularly getting less than you believe you’ve paid for from a company or giving more than you get in a relationship or friendship, it is possibly because you’re prepared to accept average. Perhaps you believe average is all you deserve. When you’re serious about accepting above average, it does something to your level of self-esteem that is liberating and powerful. When you decide that only above average is good enough, you’ll expect it, appreciate it, acknowledge it and enjoy it more than you do on an “average” day. You will also enjoy the challenge of delivering that for others; there is no better motivation to deliver outstanding service than to experience it yourself.
The next time someone tells you they’re less than thrilled with your service or product, ask them what they’d expected. Ask them what would have made it right for them and thank them for their feedback and then consider this question: Was their rejection because I’m not good enough or could it be that I would have suited them better if I had been more average?
The image at the top of this post was created by my wonderful friend and teacher, Amanda Rose. You can see her fabulous art in Myddfai Community Centre, attend one of her art classes (with me) every Wednesday afternoon, or commission her to illustrate your Poetry or writing. She’s the inspiration behind this blog; one of the most authentic, talented and above-average people I know who’s a real inspiration to me. And she makes me smile.
It’s taken until now for me to feel ready to write about the results of the UK Referendum on our membership of the European Union. I made no secret of the fact I was voting to remain, and while I stand by my decision, I am more in despair of how we seem to be reacting to the result than I am by the result itself. I keep waiting for us to respond how everyone says we will “we always stand together when the going gets tough” and “Us Brits are great in a crisis” must be the most common phrases I’ve heard since the vote. As I write this, however, I have yet to see signs of either of these being true.
When I was growing up, my parents were among very few adults I encountered who didn’t believe you shouldn’t talk politics or religion; they positively encouraged it and on more than one occasion I sat enthralled listening to heated discussions over their dinner table that went on into the small hours. I got my love of debate from listening to them talk about the Israel/Palestine crisis, Socialism and how it was being diluted and manipulated, who had which part of our Press in their pocket and how we could change any of these things. It drove me to want to be part of the change.
Currently, the trend seems to be that talking politics is a dangerous thing, to be avoided or shouted down. Indeed, many of my friends, whichever way they voted, have received angry abuse aimed at them on blogs, Facebook and Twitter. It’s shameful how quickly we are prepared to pounce on the views of others and say they are wrong because they do not agree with our own. This, for me, has been one of the most unpleasant aspects of the Referendum. Watching the language of people I know and respect turn from measured and thought-through to angry and reactionary and often down-right offensive. Aggressive defending of a political position and the desire to say “Told you so!” are not only unattractive behaviour, they also show a lack of control, a limited vocabulary and a side of someone that can make many review connections. I personally stopped following over thirty people on Facebook during the build-up to the vote as I did not want their remarks on my timeline.
Had we been living in a country like Syria, indeed anywhere in the Middle East or many of the areas to the East of our planet, then perhaps I would understand the anger that boils over to hatred. Lives have been touched by politics and religion in many parts of the world that we, in the West, can only read about or imagine. Images on TV and in the media do not come close to experiencing these awful situations first-hand. In the protected, wealthy (relatively speaking), safe haven of the West, we are living lives than most of the refugees we read so much about cannot even imagine. And yet instead of seeing hope, community, the chance to make change happen and express our opinions, we choose to create hatred, spread lies and call each other names.
I’d love to see a change, to the way we “do” politics in this country. I’d love to make it compulsory for every single adult in the UK to vote and for it to be a subject taught at school not simply as an A level of choice but as a subject of real pride; we are living in a country where our voices are heard and listened to and where they can make such vast change than our entire government has had to be changed to deal with it. I’d love to see proportional representation where every single vote matters and the opinions of every member of our society is heard. I’d love, more than anything, to see our Politicians held to account for their promises and actions, meaning they would leave behind their shouting and hatred-fuelled words, their words that incite violence and anger.
Do I believe that this vote will lead to these? No. Sadly, with what I’ve seen, I don’t believe Brexit will be the “holy-grail” that the Leave campaigners are now claiming they’ve handed us, if only it could be. Sadly, however, I have seen only evidence that the people’s vote has not been seen for anything else than a mis-guided decision and almost without exception, the remain campaigners are responding by saying “well you got us into this mess, now deal with it”. Hardly the in-it-together approach I was hoping for. Even our new Prime Minister has appointed people to roles which seem to be saying “get in there and sort this mess out – if you can” rather than appointing talented politicians who might negotiate a deal for our nation that we can be proud of.
We voted to leave; and yes, I do include myself in that, because above being a “remain voter” I am a British citizen. I want my country to succeed. I watch the Olympics with pride and wave my Union Jack flag and wear my Team GB T-shirt because I am in love with my country and hope to always be. I want the very, very best people in charge of our exit from the EU and I want new, inventive and creative people in charge of our negotiations with our nearest neighbours to ensure they still want to work, visit and play with the UK.
The people of my nation have spoken and I have to accept and embrace what they have asked for in a way that sits with my values. There have been times I have struggled with this, and I suppose that is part of the reason it has taken a while to write this post. I came across so many angry, hateful posts filled with words that I cannot embrace; racism and patriotism should not be seen as the same thing. I am British because the people who brought me up chose to live here, no other reason. As an adopted daughter, whose birth mother came from Egypt and birth father from Denmark, who had adopted parents with families that had been refugees from Poland and Russia, fleeing from oppression because of their religion, I believe I am a typically British woman. I am proud to be British, to be a melting pot of humanity, a mix of cultures and faiths that have produced me. I’d confuse most racists, who would never see me as anything but a white, middle class woman. Racism is just a load of fear, tied up in ignorance and nasty language in my opinion. I am one of the lucky ones; unless I tell you my history, I go under the radar of the haters. Only when we accept there is a huge problem with racism in the UK can we begin to beat the fear behind it.
The racists will always be here, and their fears will not be tackled by any vote or distancing of our nation. They should not be the voice we focus on. Spreading their message just gives it air-time it does not deserve. It was a shame for the people I know who voted to leave the EU, that racists hijacked their arguments and that our media was so fast to tar them all with the same brush. Time to move on.
I choose to focus my positivity and belief in the future we can choose to create if we continue to be involved, empowered and engaged, if we continue to take part in our political futures and if we turn up in the kind of numbers we did this time round, for the rest of our lives. I see it as a duty to encourage the future generations to vote whenever they get the chance and to ensure they do their research before they do. Don’t depend of the words of the media for that insight that will help you make your political choices; listen to conversations over dinner tables, go to debates, visit museums and read books. Above all, express your voice and right to make change in a country we will all be responsible for shaping, only if and when we admit we all “do” politics. It’s in everything we do and every decision we make for our country.
A few years ago, I had a series of heart attacks. From out of nowhere they stopped me in my tracks and made me reconsider everything about my life. You could say they were a major crossroads; I’ve spent a great deal of time since focussed on “letting go” of the feelings I was left with, that I’d been deprived of the future I’d been planning, a brief example of what lay ahead enjoyed, the perfect business collaborations and friendships formed, all to be knocked back, all to be no longer available in my new life. I think it was only yesterday that it hit me, I’d been so busy trying to let go, I had forgotten to look forward, to plan a new way, to explore what I have now that will shape a new path.
When life changes mean we have to make new choices, we have to allow ourselves a period of time to learn to adjust; that time required for acceptance to replace anger and frustration, time that heals initial pain and confusion and stops us asking “why did this happen to me” and replaces it with “what can I do no that this has happened?” and finally “I’m ready to see a future, how ever different it looks to the one I imagined.” When I was 26, I had a car accident that left me in a wheelchair for almost 12 years and one of my key learnings from this experience was that we have to mourn things we loose, not just people. I lost the use of my legs at 26, I had to mourn all the things I had lost from my independence to my joy of mountain climbing to making love with my husband. I had suffered a loss, a bereavement, the death of my life the way it had always been.
The last few years have been my time to adjust, to come to terms with my latest loss, the belief that my heart was strong and would work, without me thinking about it, for many years to come. Once you’ve lived through the heart attacks, the surgery, the physical recovery, the news of heart-failure, the difficulty breathing and total inability to do much of anything without help from others, you start to accept. Acceptance that you are a different person, physically, and that means mentally too. Acceptance that life is not going to look how you imagined, or planned. Acceptance that every day is rather special, precious, too important to waste on worries and concerns.
Now, I’ve reached the point of planning for a future; that feels amazing. Seriously, when you’ve spent a few years not knowing if you’re going to make it, you see every single day as a bonus (even the ones where you feel negative and scared and less than great) because it’s been such an enormous effort, on the part of so many, to make it here. Planning can take on a whole new meaning now, not just something I’m told to prepare for my business to thrive, but instead, a plan for my life, to live every day as though it might be the last chance I get to enjoy feeling this good. I’m reminded of a song by Tim McGraw called “My next thirty years” and the lines speak to me of making every moment count.
My focus now is changing, from letting-go to letting-in; I’ve pondered enough times to last me a long, long life, what might have been if I hadn’t had the heart-attacks. It is time to let in the new, embrace the opportunities starting to come my way with my new focus, my new goals in place. It can so often be the case that we’re not open to new opportunities because we’re so focussed on the past, the ones we think we missed or messed up. Not for me, that time in my life is through; I know I have limits, that my heart is depending on me to look after it and make sure I stick to those limits and behave. And it’s also telling me in a loud, strong, clear voice “I trust you. Go get ’em girl. It’s time!”
And it is time. Time to move forward. Time to let go of the letting-go and time to get on with the next chapter of this remarkable life.
It is, it really is! It’s all about YOU. Isn’t that wonderful news? Or is it rather scary? We’ve grown up being told it’s not all about us, that we should focus more on those around us, make our mission in life to put others first. And these are wise words. Indeed, I am a great believer that focussing on others builds us as people and gives us huge joy. So when did the rules change?
They changed the moment you decided to follow that dream – you remember, that crazy moment when you put on that new hat and said “I’m going into business on my own!” The minute you decided to blaze your trail and join the ranks of the Entrepreneur, you changed the rules.
And if you didn’t you missed something HUGE!
Here are a few reasons why it’s all about YOU:
– YOU are the real USP (unique Selling Point) in your business. People do buy from people. When there is a choice about where we spend our money (especially when money is tight) we’d rather spend it with someone we know and trust; someone we’ve connected with or heard great things about. YOU.
– YOU are the values in your business, the ethics and code of conduct. YOU are the Customer Service Policy, the Complaints Procedure and the Guarantee. YOU set the standards that create your credibility. YOU.
– YOU are the face and the voice of your business, the person who engages on social media, who writes the blogs, who shares the pictures of your family and your first time on a stage or meeting new people. YOU.
– YOU are the driving force, the energy that kick-starts the action every Monday morning, the determination to keep going when it feels like it’s hard out there, the reason to get up and do it all again tomorrow. YOU.
Most of all, YOU are the one that will realise that, above all else, when you embrace that it’s all about your contacts, your clients, your friends and your collaborators, when you value them above everything else in your business, YOU will be a success.
It really is all about YOU.
Have a great day
…There is NO secret. Honestly. There is no answer that will be revealed when you’ve learned enough, or suffered enough. There is no Secret to happiness, success or lasting contentment. AND THATS GREAT NEWS!
Great news for all of us; there is no secret to any of the things we all strive for – happiness, success in love work business relationships parenthood…The list goes on. There are plenty of opportunities, new things to learn, choices to be made and some of them may be painful. These things will all be in your control and you are capable of deciding which ones you want to put effort into, which ones will lead you where you want to go.
The idea that you can read a book, take part in a programme or work with a Coach and suddenly you’re going to have all the answers is a myth. I’m not sure where it started, and I know the idea of a secret was around long before people started to talk about “the universe delivering” or even “What goes around comes around.” I have to say that, in my opinion, these are two of the other great myths of our time.
The one truth that does apply to all the really happy, successful people I know is a simple one: they’ve all worked really, really hard to get where they are. Did they all believe they were going to succeed? No, not always. Did each of them have amazing support behind them? Again, no; neither financial or moral support were particularly relevant to their success. Each of them has a very different journey, a unique story of their life. And not one of them believes there is a Secret to their success.
I had a client a few years ago, who spent the best part of 20 years going from training programme to retreat, to mentor, to coach and most recently, back to University (in her 50s). While I’m all for personal growth and learning, there is a time when you have to actually put what you’ve learned into practice. So what’s keeping her so engaged in learning? She’s searching for that promised Secret, and she’s not quitting until she finds it!
Let’s learn from her experience and from the truly successful people around us (however we choose to measure that) and spend less time looking for “the answer” and instead, start creating our own results, which we can take credit for. It’s no secret that’s got to feel good!
Have an excellent day
in June last year, I added a significant streak of blue “semi-permenant” hair colour to my blond bob in order to help raise awareness for Harrison’s Fund, fighting to find a cure for Duchenne muscular dystrophy. It seemed like such a good idea at the time; Blue Hair Day – a great way to get people to notice and learn about this terrible disease. What I hadn’t expected was that, almost a year later, I’ve still got remnants of that “semi-permanent” blue. What a nghtmare!
“I take it you won’t be going blue again this year!” My husband, John, commented when I mentioned the new website for Blue Hair Day was up and running. “what a bloody nightmare that’s been!” And that’s when it hit me (okay, it takes time to get things sometimes); my silly bit of blue hair was far from a nightmare. At worst it was a silly frustration that looked a bit like I’d over-done colouring and caused a reaction.
The real nightmare, the one I’d missed was Duchenne itself. The nightamre is what every family living with Duchenne wakes up to every day, only to discover it’s real. My hair was trivial and had, in fact, served its purpose well; by staying put, by being anything but “semi-permanent” I had been given a daily reminder of why I’d gone blue in the first place. I was raising awareness of somethign every child and parent with this awful disease has no choice about; Duchenne isn’t semi-permanent, it’s real, wrecking lives and in urgent need of investment to find a cure and save the lives of every child (almost exclusively boys) fighting every day against this debilitating, terminal condition.
Will I be going blue again this June? Of course I will and this time, I plan to talk to every single person who comments on my hair and tell them “It’s permanent, just like Duchenne.”
Please visit the Facebook page for Blue Hair Day and “like” to follow all the plans and how you can get involved in making a difference. Are you brave enough to go blue?